What a roller coaster we have been on lately. We continue to go to different doctors as we try to find the cause of Brielle's health issues. We are still off dairy and wheat, but she still continues to have abdominal cramping. The latest specialist we went to ran some tests and determined she had low iron, high acidity level in her blood, white blood cells in her stool which indicates intestinal inflammation, and split fats in her stool which indicates malabsorption. The specialist wanted to wait a bit before we did anything. I had them fax our pediatrician the test results so we could discuss them at Brielle's 1 yr checkup. He was very concerned about the split fats, so he decided it was time to see a specialist at Primary Children's Hospital. It was a 5 week wait to see someone, so the pediatrician called one of the doctors directly and talked to him about Brielle. After discussing her history, the specialist's first thought was to test her for Cystic Fibrosis. I guess that even though she has no respiratory problems, CF can attack the digestive system first. She has a lot of the symptoms of CF kids, so he wanted her tested immediately. So we went in the next day for the test. They first put some electrodes on her arms and held her arms still for 5 minutes while it stimulated her sweat glands. Then they put gauze on her arms and wrapped them up with heat packs and an emergency blanket. We walked around the hospital for 30 minutes while the gauze soaked up her sweat. Brielle did quite well and we were glad it was an easy test. They said that they usually call those with positive results sometime in the evening. So we waited ALL day, sick to our stomachs. I couldn't stop crying for most of the day. My mom had the day off so she came and helped with the kids while I was gone, then waited with me all day. It was very emotionally draining as we couldn't stop picturing what life would be like if she had CF. The life expectancy is in the 30's, so it was crushing us to think that her life would be cut short. We waited, and no phone call. We continued to stress all weekend until we saw the doctor on Monday morning where he confirmed that the test was negative. We feel very blessed to have this behind us. We still don't know what is wrong, but it feels nice to cross this off the list of possibilities.
11 years ago
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